JUNE: Million Dollar Bike Ride Philadelphia USA 8 June 2019

The Aarskog Foundation, as a global genes alliance member will partake in the Million Dollar Bike Ride, a cycling event that raises funds for rare disease research.

The event takes place on Saturday, June 8, 2019 in Philadelphia, Pennsylvania.

JUNE: Rare Drug Development Symposium Philadelphia USA 6-7 June 2019

Global Genes, in partnership with the Orphan Disease Center at the University of Pennsylvania School of Medicine, hosts the annual RARE Drug Development Symposium designed to connect, educate and inspire rare advocates.

The Symposium focuses on the drug development process and the role of rare disease advocates.

This event takes place in conjunction with the University of Pennsylvania’s Million Dollar Bike Ride (MDBR), a cycling event that raises funds for rare disease research.

MARCH: Rare On The Road Boston USA 30 March 2019

Will you be attending Rare on the Road 2019? Don't forget to come and find us if you can make it?

https://globalgenes.org/event/rare-on-the-road/

OCT: Genetic Alliance UK Information Day 18 Oct 18

On Wednesay 18th October Genetic Alliance UK will be holding their information event in Scotland. The event is open to those with in interest in rare genetic or undiagnosed conditions. There will also be presentations on a variety of topics. The agenda will follow nearer the time, but more more information click here.

MAY: 9th European Conference on Rare Diseases & Orphan Products 10-12 May 18

9th European Conference on Rare Diseases & Orphan Products (ECRD 2018 Vienna) 9th European Conference on Rare Diseases & Orphan Products (ECRD 2018 Vienna)10-12 May 2018, Messe Wien Congress Center, Vienna, Austria. 

www.rare-diseases.eu