OCT: Genetic Alliance UK Information Day 18 Oct 18
On Wednesay 18th October Genetic Alliance UK will be holding their information event in Scotland. The event is open to those with in interest in rare genetic or undiagnosed conditions. There will also be presentations on a variety of topics. The agenda will follow nearer the time, but more more information click here.
MAY: 9th European Conference on Rare Diseases & Orphan Products 10-12 May 18
9th European Conference on Rare Diseases & Orphan Products (ECRD 2018 Vienna) 9th European Conference on Rare Diseases & Orphan Products (ECRD 2018 Vienna)10-12 May 2018, Messe Wien Congress Center, Vienna, Austria.
MARCH: NIHR ‘Think Research’ Rare Diseases Patient Day 21 March 18
NIHR Cambridge Biomedical Research Centre (BRC) are holding a 'Think Research' Rare Diseases Patient Day on Weds 21 March 2018 at Friends House, London from 10am to 4pm.
The day is a joint collaboration between NIHR Cambridge BRC and NIHR BioResource for Translational Research. The aim of the day is to provide insight and training in aspects of Rare Diseases research, as well as information-gathering and networking opportunities. It will be a Rare Diseases day to remember with representatives from Rare Disease patients, organisations, panels, charities, splendid speakers and a choice of training sessions.
Find out more here
MARCH: UK Genetic Disorders Leadership Symposium 9-10 March 18
The 2018 UK Genetic Disorders Leadership Symposium will take place on Friday 9 and Saturday 10 March at the Amba Hotel in Charing Cross, London.The 2018 UK Genetic Disorders Leadership Symposium will take place on Friday 9 and Saturday 10 March at the Amba Hotel in Charing Cross, London.
Registration is now open and you can register here
FEB: Rare Disease Day 28th February 2018
Rare Disease Day is an annual event, recognised by countries around the world that aims to raise awareness about rare diseases, and their impact on patients. Rare Disease UK is the national Campaign for people with rare diseases and all who support them. On February 28th 2018 across the UK, taking a political approach, many patient organisations will hold receptions and debates focused on rare disease policy in local and national parliaments. In 2017 celebrations covered 13 cities with conferences, family days and a fundraising dinner.