Million Dollar Bike Ride
The Aarskog Foundation, as a global genes alliance member will partake in the Million Dollar Bike Ride, a cycling event that raises funds for rare disease research..
Rare Drug Development Symposium
Global Genes, in partnership with the Orphan Disease Center at the University of Pennsylvania School of Medicine, hosts the annual RARE Drug Development Symposium designed to connect, educate and inspire rare advocates.
10 years ago Michelle Erskine had a vision to bring parents together from around the world to better understand Aarskog Syndrome and to support one another. "The Aarskog Syndrome group” as a Facebook group started in 2008.
Aarskog Syndrome Awareness Day
We are pleased to announce Aarskog Syndrome Awareness Day as being annually held on 29th September in memory of John & Christopher Robin, who sadly passed in 2018.