Team Aarskog complete TBT2017
This event The TBT2017 comprised of Myself (Michelle Erskine), Delia Treby, Stacy Frodsham, John MacPhail, Jonna Adams, Suzanne Walker, Beverley Seedsman, Shelly Burgess. We completed the course at different times but everyone was under the time of 4hours 15 mins.
Thames Bridges Trek 2017
We are venturing across the Capital taking in unrivalled views of the skyline from its best vantage points. Setting out from Putney Bridge, we head East towards the City, zig-zagging over the array of historic bridges - each with its own fascinating story - and a mid point stop in Vauxhall for some snacks & drinks. 25km later, it's a finish line celebration in Southwark past the majestic Tower Bridge
You can track our progress here
Genetic Alliance UK General Meeting & Conference
The Genetic Alliance UK's upskilling member's conference is going to be held on 26th September in London. Aarskog Syndrome Foundation MD, Michelle Erskine will be in attendance. After the Annual General Meeting, there will be keynote speakers, workshops and an interactive session.
If you would like to find out more information, click here
The Aarskog Foundation joins Scottish Parliament cross-party group
We were thrilled to have recently begun working with the Scottish Parliament Cross-Party Group on Rare Genetic and undiagnosed conditions. In November 2016 Rare Disease UK began a first briefing on the implementation of the Rare Disease Strategy for Scotland 2017.