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The Aarskog Foundation joins Scottish Parliament cross-party group

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We were thrilled to have recently begun working with the Scottish Parliament Cross-Party Group on Rare Genetic and undiagnosed conditions. In November 2016 Rare Disease UK began a first briefing on the implementation of the Rare Disease Strategy for Scotland 2017.

In June 2017 Michelle Erskine from The Aarskog Foundation was pleased join fellow Rare Genetic colleagues, Natalie Frankish from Genetic Alliance, MSP Chair Bob Doris and other experienced Rare Disease Advocates at Hollyrood to begin talks.

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