Rare Disease Day 28th February 2018
Rare Disease Day is an annual event, recognised by countries around the world that aims to raise awareness about rare diseases, and their impact on patients.
Rare Disease UK is the national Campaign for people with rare diseases and all who support them. On February 28th 2018 across the UK, taking a political approach, many patient organisations will hold receptions and debates focused on rare disease policy in local and national parliaments. In 2017 celebrations covered 13 cities with conferences, family days and a fundraising dinner.