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    Bringing Aarskog families
    together, because together
    we can make a difference.
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    Bringing Aarskog families
    together, because together
    we can make a difference.
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    Bringing Aarskog families
    together, because together
    we can make a difference.
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Bringing Aarskog families together, because together we can make a difference.

About Aarskog Syndrome

The Aarskog Foundation is a global alliance of people living with Aarskog Syndrome (AS) of all nationalities.

The Aarskog Foundation brings together National and International Aarskog Syndrome patients from around the world to create a global alliance of patients and families faced with common challenges derived from the rarity of this RARE Genetic condition.

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Latest News

Team Aarskog complete TBT2017

Team Aarskog complete TBT2017

Thames Bridges Trek

This event The TBT2017 comprised of Myself (Michelle Erskine), Delia Treby, Stacy Frodsham, John MacPhail, Jonna Adams, Suzanne Walker, Beverley Seedsman, Shelly Burgess. We completed the course at different times but everyone was under the time of 4hours 15 mins. 

Thames Bridges Trek 2017

We are venturing across the Capital taking in unrivalled views of the skyline from its best vantage points. Setting out from Putney Bridge, we head East towards the City, zig-zagging over the array of historic bridges - each with its own fascinating story - and a mid point stop in Vauxhall for some snacks & drinks. 25km later, it's a finish line celebration in Southwark past the majestic Tower Bridge

 You can track our progress here

Genetic Alliance UK General Meeting & Conference

Genetic Alliance UK General Meeting & Conference

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The Genetic Alliance UK's upskilling member's conference is going to be held on 26th September in London. Aarskog Syndrome Foundation MD, Michelle Erskine will be in attendance. After the Annual General Meeting, there will be keynote speakers, workshops and an interactive session.

If you would like to find out more information, click here

 

Fundraising

Fundraising

You can help Aarskog Syndrome children by offering meaningful ways you can make a difference. We are recruiting for a new Trustee as Treasurer.

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Become a member

Become a member

Join the Aarskog Foundation and receive membership benefits such as our full range of discussion groups and discounts on events.

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Events

Events

Click here to view the latest events The Aarskog foundation is hosting or involved with with information on how to get involved.

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Get in touch

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Contact us

Call 0800 001 6623

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