• Slide 1
    Bringing Aarskog families
    together, helping to make
    a difference by improving
    lives of those affected by
    Aarskog Syndrome
  • Slide 2
    Bringing Aarskog families
    together, because together
    we can make a difference.
  • Slide 3
    Bringing Aarskog families
    together, helping to make
    a difference by improving
    lives of those affected by
    Aarskog Syndrome
  • Banner
Bringing Aarskog families together, because together we can make a difference.

The Aarskog Foundation

The Aarskog Foundation is a global alliance of people living with Aarskog Syndrome (AS) of all nationalities.

The Aarskog Foundation brings together National and International Aarskog Syndrome patients from 24 countries around the world creating a global alliance of patients and families faced with common challenges derived from this RARE Genetic condition.

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52 Events in 50 Countries - Download your free poster here

Latest News

Rare Disease Day 28th February 2018

Rare Disease Day 28th February 2018

logo rare disease dayRare Disease Day is an annual event, recognised by countries around the world that aims to raise awareness about rare diseases, and their impact on patients.

UK Genetic Disorders Leadership Symposium - 9-10 March 2018

UK Genetic Disorders Leadership Symposium - 9-10 March 2018

2018leadershipsymposium logo v2The 2018 UK Genetic Disorders Leadership Symposium will take place on Friday 9 and Saturday 10 March at the Amba Hotel in Charing Cross, London.

NIHR ‘Think Research’ Rare Diseases Patient Day -  Weds 21 March 2018

NIHR ‘Think Research’ Rare Diseases Patient Day - Weds 21 March 2018

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NIHR Cambridge Biomedical Research Centre (BRC) are holding a 'Think Research' Rare Diseases Patient Day on Weds 21 March 2018 at Friends House, London from 10am to 4pm. 

Fundraising

Fundraising

You can help Aarskog Syndrome children by offering meaningful ways you can make a difference. We are recruiting for a new Trustee as Treasurer.

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Become a member

Become a member

Join the Aarskog Foundation and receive membership benefits such as our full range of discussion groups and discounts on events.

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Events

Events

Click here to view the latest events The Aarskog foundation is hosting or involved with with information on how to get involved.

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Get in touch

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Contact us

Call 0800 001 6623

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