• Slide 1
    Bringing Aarskog families
    together, helping to make
    a difference by improving
    lives of those affected by
    Aarskog Syndrome
  • Slide 2
    Bringing Aarskog families
    together, because together
    we can make a difference.
  • Slide 3
    Bringing Aarskog families
    together, helping to make
    a difference by improving
    lives of those affected by
    Aarskog Syndrome
  • Banner
Bringing Aarskog families together, because together we can make a difference.

The Aarskog Foundation

The Aarskog Foundation is a global alliance of people living with Aarskog Syndrome (AS) of all nationalities.

The Aarskog Foundation brings together National and International Aarskog Syndrome patients from 27 countries around the world creating a global alliance of patients and families faced with common challenges derived from this RARE Genetic condition.

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 Latest News

The Aarskog Foundation becomes a RARE Foundation Alliance partner

The Aarskog Foundation becomes a RARE Foundation Alliance partner

rarefoundationalliance

Alongside more than 400 other rare disease organizations, The Aarskog Foundation is also now proud to be partnering with RARE Foundation Alliance.

Team Aarskog set to do Skydive to raise money for Findacure

Team Aarskog set to do Skydive to raise money for Findacure

Findacure logo

Michelle and Team Aarskog will be bracing themselves for her Skydive on Saturday 25th August, to raise money for Findacure.

The Aarskog Foundation to attend RARE Patient Advocacy Summit

The Aarskog Foundation to attend RARE Patient Advocacy Summit

Michelle Erskine of The Aarskog Foundation will be attending the 2018 RARE Patient Advocacy Summit in October, in connection with Global Genes. The Aarskog Foundation are an allied member of Global Genes, whose aim is to provide connect empower and inspire those with rare diseases, their caregivers and the rare disease community.

Fundraising

Fundraising

You can help Aarskog Syndrome children by offering meaningful ways you can make a difference. We are recruiting for a new Trustee as Treasurer.

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Become a member

Become a member

Join the Aarskog Foundation and receive membership benefits such as our full range of discussion groups and discounts on events.

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Events

Events

Click here to view the latest events The Aarskog foundation is hosting or involved with with information on how to get involved.

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Get in touch

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Contact us

Call 0800 001 6623

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