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Bringing Aarskog families together, because together we can make a difference.
International Aarskog Awareness week 29th September - 4th October 2019

International Aarskog Awareness week
29th September - 4th October 2019

Are YOU Aarskog Aware? #AskAboutAarskog?

#AarskogSyndrome #AarskogPatients #AarskogUK #AarskogUSA #AarskogEurope #AarskogAsia

The Aarskog Foundation

We are the worlds largest international parent led, patient Charity for the X-linked Rare Disease Aarskog Syndrome.

The lives of around 0.4 per million people across the world are living with this Rare Disease, which progresses into a serious life long condition of which to date there is no known cure.

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Fundraising

Fundraising

You can help Aarskog Syndrome children by offering meaningful ways you can make a difference. We are recruiting for a new Trustee as Treasurer.

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Become a member

Become a member

Join the Aarskog Foundation and receive membership benefits such as our full range of discussion groups and discounts on events.

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Events

Events

Click here to view the latest events The Aarskog foundation is hosting or involved with with information on how to get involved.

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Get in touch

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MAKE A DONATION

To make a donation, text  'AARSKOG'  to 70085 to donate £5. This costs £5 plus a std rate msg.
Alternatively, you can opt to give any whole amount up to £20. Thank you!

"Bringing Aarskog families together, because together we can make a difference."