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  • Slide 1
    Bringing Aarskog families
    together, helping to make
    a difference by improving
    lives of those affected by
    Aarskog Syndrome
  • Slide 2
    Bringing Aarskog families
    together, because together
    we can make a difference.
  • Slide 3
    Bringing Aarskog families
    together, helping to make
    a difference by improving
    lives of those affected by
    Aarskog Syndrome
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Bringing Aarskog families together, because together we can make a difference.

The Aarskog Foundation

The Aarskog Foundation is a global alliance of people living with Aarskog Syndrome (AS) of all nationalities.

The Aarskog Foundation brings together National and International Aarskog Syndrome patients from 27 countries around the world creating a global alliance of patients and families faced with common challenges derived from this RARE Genetic condition.

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Latest News

Million Dollar Bike Ride

Million Dollar Bike Ride

The Aarskog Foundation, as a global genes alliance member will partake in the Million Dollar Bike Ride, a cycling event that raises funds for rare disease research..

Rare Drug Development Symposium

Rare Drug Development Symposium

rare drug development

Global Genes, in partnership with the Orphan Disease Center at the University of Pennsylvania School of Medicine, hosts the annual RARE Drug Development Symposium designed to connect, educate and inspire rare advocates.

Non-profit News

Non-profit News

10 years ago Michelle Erskine had a vision to bring parents together from around the world to better understand Aarskog Syndrome and to support one another. "The Aarskog Syndrome group” as a Facebook group started in 2008.

Fundraising

Fundraising

You can help Aarskog Syndrome children by offering meaningful ways you can make a difference. We are recruiting for a new Trustee as Treasurer.

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Become a member

Become a member

Join the Aarskog Foundation and receive membership benefits such as our full range of discussion groups and discounts on events.

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Events

Events

Click here to view the latest events The Aarskog foundation is hosting or involved with with information on how to get involved.

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Get in touch

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